H. Evans, Olivia C Robinson, L. von Nerée, B. Smith, Rosamund Yu, Ester Bellavia, Jan Speechley, Julia Walsh, S. Stanworth, R. Foy
2026.2.1HEALTH EXPECTATIONS
tlooto Summary
This work aimed to develop actionable, task‐focused guidance for PPIE in health data research by defining specific tasks to reduce the likelihood of tokenistic involvement in patient and public involvement and engagement.
Abstract
Patient and public involvement and engagement (PPIE) is essential throughout the research cycle, but a one‐size‐fits‐all approach does not suit all study types. Health data research presents several unique challenges, including ensuring data transparency and security. Thus, PPIE guidance should ideally define specific tasks to reduce the likelihood of tokenistic involvement. We therefore aimed to develop actionable, task‐focused guidance for PPIE in health data research.
Citation format
EVANS, H., et al. Defining patient and public involvement and engagement tasks in health data research: A consensus study. HEALTH EXPECTATIONS, 2026, 29(1): e70578.