‘We can go hand in hand’ – patients with COPD and their experiences of relational continuity of care in Swedish primary care: a qualitative study

Abstract Aim This study aimed to explore how patients with chronic obstructive pulmonary disease (COPD) experience continuity of care through their encounters with a specialised asthma/COPD Registered Nurse in primary care. Design An inductive qualitative study using interpretive description. Methods Data were collected through semi-structured individual interviews with 13 purposively sampled patients with COPD from four regions in Sweden. The audiotaped interviews were conducted over a 5-month period (September 2024–January 2025) via telephone, transcribed verbatim and analysed using interpretive description. Results Three themes describe the results. Meaningful care when encountering a dedicated nurse, which patients describe when encountering the same trusted nurse. Being acknowledged and listened to highlights the patient’s appreciation for the nurse’s knowledge and competence, both regarding the patient and the disease. Feeling trust in the relationship, a personal but not overly private relationship that fosters trust, which is essential since COPD can be a shameful disease. Some patients haven’t shared their diagnosis with loved ones, making the nurse a vital and comforting point of contact. Conclusion Patients with COPD value continuity of care with a specialised asthma/COPD Registered Nurse. Trust and a non-judgmental relationship are essential for continuity to be experienced positively. Continuity is more than repeated encounters; it requires quality interactions that empower patients and address the stigma associated with COPD. Reporting Method Consolidated Criteria for Reporting Qualitative Research guidelines.